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Here I would love to share with you our travels and adventures as international mushroom consultants. MEMOIRS about husband Pieter Vedder, who was a SCIENTIFIC PIONEER in Mushroom Cultivation Education. His practical handbook is in 9 languages and is called the MUSHROOM BIBLE: https://mariettesbacktobasics.blogspot.com/2020/08/modern-mushroom-growing-2020-harvesting.html
Showing posts with label World Leprosy Day. Show all posts
Showing posts with label World Leprosy Day. Show all posts

Saturday, January 28, 2023

TV Interview by Sue Colter with Pieter J.C. Vedder about Leprosy Project in Indonesia

Sunday, January 29, 2023 is again World Leprosy Day...
So I like to share with you this local TV interview by Sue Colter (and Gillis Video) with Pieter J.C. Vedder about Leprosy Project in Indonesia.
Pieter got quite emotional in telling his/our story...
Click CC for subtitle/closed captions.
It sure IS heartbreaking and if one reads today on World Data Atlas that it is even inside the USA—that is scary!

World Leprosy Day 2023: Stories of persons affected by leprosy ←click link.

Each year there are 200,000 people diagnosed with leprosy...
DON'T THINK THAT IS FAR AWAY...!
With our open border—it might even be higher than that...!

Related links:

Friday, January 28, 2022

WORLD LEPROSY DAY

 On January 30, it will be the annual WORLD LEPROSY DAY
In 1989 this lady received a prosthesis from Princess Diana and then in 1997 from the Dublin, Georgia, USA Rotary Club.
As you quite well know, while working and living in Indonesia we got involved with the Leprosy project.


Even back in my birth country The Netherlands we had a leper colony...
The Windmill Herald was a bi-weekly Dutch-English Newspaper printed by Vanderheide Publishing Co Ltd. Langley, BC Canada.

Comments are off here, only via above link...

Wednesday, March 19, 2014

{My 6 Min Presentation The Truth About Leprosy for GPDLI, AtAmerica U.S. EMBASSY JAKARTA}

In commemoration of World Leprosy Day I got invited by Mr. Nuah Tarigan Sahing from GPDLI (Disability Care Movement & Leprosy Indonesia) to be a speaker at the Talk Show from AtAmerica, U.S. EMBASSY JAKARTA. Of course I felt honored but it was impossible to be present for the actual presentation in Indonesia on Friday, February 28... 
~
We were coming home from The Netherlands to the U.S. on February 25. Knowing full well that it was the LAST time I would ever see my Mom — but I agreed for having a professional video made with the help of a dear friend and great donor for the Dublin, Georgia/U.S. Rotary Club's Leprosy project in Jakarta, Indonesia. Below this post you will find the two previous posts that I did write about our visits to the Leprosy hospital where also Princess Diana did visit.
Coming home by 22:15 on the 25th, I did dedicate the 26th for writing the transcript for my 6 minute video presentation. The video was made in friend Gil's studio Gillis Studio (click link) on the 27th. 
Not quite recovered from my jet-lag and seeing my Mom for the very last time, but it was not about me but about Ending the Stigma.
Real video is further below...
'Advocate for ending the STIGMA of Leprosy'
The above is just a screenshot; not the actual video for clicking on! That is further down...
The time of 2:00 - 4:00 PM or 14:00 - 16:00 would have been in the middle of the night for me in U.S. time. No way I could have done this in real time...
So uploading my 6 minute video onto YouTube made it possible for them to show it for the Presentation.
This you can click in the center for viewing!
If you like to watch this on YouTube you also find the link to my complete transcript as well as here below:
The Truth About Leprosy - Experiences by a USA Citizen for GPDLI & US EMBASSY Indonesia.pdf
Direct link to YouTube: The Truth About Leprosy - Experiences by a USA Citizen for GPDLI & US EMBASSY Indonesia
This is my contact person Nuah Tarigan Sahing, from the GPDLI, Jakarta, Indonesia.
He is a warrior on behalf of those Leprosy victims and we need more people like him that are active on social media for raising awareness.
All participants in this Talk Show are seated and here the Host is introducing me as a friend of GPDLI... This is where the Live Stream (just click hyperlink) will be showing my YouTube uploaded video.
This is me in the Leprosy hospital in Jakarta, Indonesia.
In 1989 this lady received a prosthesis from Princess Diana and then in 1997 from the Dublin, Georgia, USA Rotary Club.
Ending my 6 minute presentation with the words:
The Stigma of Leprosy has to STOP!
We need to raise more awareness in the media and with journalists.
Pleased that this @america video Presentation The Truth About Leprosy yielded 4,798,000 viewer minutes so far. It has been taken off the air later...
 
LEPROSY IS A CURABLE DISEASE
LEPROSY IS NOT A HEREDITARY DISEASE
 LEPROSY IS LIKE ANY OTHER DISEASE IT CAN BE CURED
Related links:
{World Leprosy Day} | previous post by me
{Like Princess Diana, I also Tried to Tackle the Leprosy Stigma} | previous post by me
{My 8th Blog Award - Sunshine from Japan} | previous post by me mentioning our fight for the underdog
{We saw FOUR Armadillos at Lunch Time!} | Humans can acquire a leprosy infection from armadillos by handling them or consuming armadillo meat, and are a presumed vector and natural reservoir for the disease in Texas and Louisiana - previous post by me
{Mom & Dad's 65th Wedding Anniversary} | coming home from The Netherlands—seeing Mom for the LAST time...‏

Sunday, February 2, 2014

{World Leprosy Day}

French philanthropist and writer, Raoul Follereau, initiated World Leprosy Day in 1954. It is being observed around the world on the last Sunday of January, or the nearest Sunday. This year that results in Sunday, February 2 for 2014 as it is the nearest Sunday. On December 20, I did write a post about both of us visiting the very same Leprosy Hospital in Jakarta, Indonesia where Princess Diana visited in 1989. You find that link below this post for those that missed it.
At the Amsterdam taxfree airport shop, Pieter bought me this long necklace of Majorica crema rosa pearls and in Singapore the matching Christian Dior pearl earrings.
Wearing the necklace here double.
This is me, back in 1997 in the Jakarta, Indonesia Leprosy hospital with a male patient.
Look at his disfigured hands... and skinny arms!
We both have been passionately involved in this Leprosy Project.
Indonesia belongs to the 3 billion people on this earth that have people that make less than US $ 2.00 per day. How would a leprosy patient who is also an outcast, make enough money to afford any surgery?
Immigration, World Poverty and Gumballs - Updated 2010 BEST video to show you this reality!
As if two affected hands would not be enough... look at his foot!
Showing you that due to this infection, the entire leg becomes swollen.
This man's feet are also affected... They are not able to wear shoes with such severely disfigured feet and thus they are even more prone to infection and open wounds.
November 20, 1999, I am holding here the hand of a poor man who lost already one hand and half of the other one... Seen is only his thumb and his palm; fingers are gone! Just imagine having to live like that!
People in the Western world complain about poverty but that is a far cry from those 3 billion, making LESS than US $ 2.00 a day. They cannot afford anything. 
Because Leprosy still has this Stigma about it, people that have the initial signs of this dreaded disease from biblical times, hide...
This young woman is lucky for having come to the hospital with her skin rash that is the beginning of Leprosy. Usually those untreated, loose their nose and part of their face and turn blind as well.

above text is from the Dutch Leprastichting. 
Sure, from the comments I received, there might be the need for providing some figures about annual new cases of leprosy world wide. In 1997 that was 600,000 annual and in 2010 less than 250,000 but keep in mind the millions that became disfigured because of leprosy!

The Dutch Leprastichting (Leprosy foundation) link also tells us about the human rights issues for ex leprosy and leprosy sufferers.
Did you know that the Leprosy foundation in The Netherlands receives money from De Nationale Postcode Loterij (The National Zipcode Lottery) and since 1996 they received 19.5 million Euro for the Leprastichting.
Wikipedia about Leprosy for above info, just scroll down.
The worldwide ILEP Federation is another help program.

Let us not turn away from those pour souls and educate others to tackle the harsh Leprosy Stigma and Ostracism!

Related links:
{Like Princess Diana, I also Tried to Tackle the Leprosy Stigma} | previous post by me
Why is it hard to eradicate leprosy? | article in The Economist November 11th, 2013
{My 6 Min Presentation The Truth About Leprosy for GPDLI, AtAmerica U.S. EMBASSY JAKARTA} | post by me with video + Pdf transcript link
{My 8th Blog Award - Sunshine from Japan} | previous post by me mentioning our fight for the underdog 
{We saw FOUR Armadillos at Lunch Time!} | Humans can acquire a leprosy infection from armadillos by handling them or consuming armadillo meat, and are a presumed vector and natural reservoir for the disease in Texas and Louisiana - previous post by me

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